ORCHID-E will be populated using a rolling retrospective update of around 19 million patients registered at English and Welsh GP practices. Data will undergo a procedure of double-pseudonymisation prior to inclusion in the ORCHID-E platform.
ORCHID-E will be a double pseudonymised, research database to facilitate well-designed epidemiological research, with a focus on primary care. It will include computerised medical records data from over 1,900 general practices including and over 18 million patients.
The aim of ORCHID-E is to provide researchers access to patient-level, double pseudonymised, coded and numeric clinical linked data from over 18 million individuals to facilitate preventive health care, diagnosis, risk prediction, clinical management and patient outcomes and to inform health care policy and practice. These data will be cleaned, structured, and, in the future, we hope to be able to link to pseudonymised secondary care (e.g. HES) mortality and Cancer Registry data.
Additionally, ORCHID-E may be used to develop feasibility and sample size calculations for the development and design of trials and other interventional studies.
Only research approved by the Primary Care Hosted Research Datasets Independent Scientific Committee (PrimDISC) will be authorised to access ORCHID-E datasets.